Health experts Wednesday highlighted the need for an immediate call-to-action for the implementation of the National Policy for Treatment of Rare Diseases, stating that the patients were suffering and losing out on time.
The policy was approved by the Union Health Ministry in May last year, but it is yet to see light of the day.
"With the policy now having been approved for more than a year, it has become crucial that it is implemented in a prompt manner. There has been no headway and the government is showing no urgency," Prasanna Shirol,
Experts also expressed disappointment over the
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