Dieases

Kerala to launch rare disease patient registry, treatment clinic this year

A registry for rare disease patients in the state will become a reality this year, State Health Minister Veena George said on Friday. Speaking after inaugurating a workshop for experts in rare disease treatment here, George said the government aims to prevent rare diseases as its primary objective. She said a rare disease treatment clinic will be established in Kozhikode this year. The government is making efforts to bring affected children back to life, the minister said. "The registry for rare disease patients in the state will become a reality this year," George said. According to her, currently, more than 90 per cent survival rates have been achieved for children undergoing treatment for SMA (Spinal Muscular Atrophy). She said the state government aims to identify congenital disabilities and ensure specialised treatment for children. "Kerala is making significant strides in the field of rare disease care. In February 2024, the state government launched the CARE scheme for ra

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